I slept later than I should have this morning. I just overdid it yesterday. I should no better. The house needs to be cleaned. I did manage to get the floor mopped. I usually use Spic and Span but am out so used vinegar and water today. Vinegar seems to do a fair job of getting it done.
Lots more to get done though.
I'm sitting in my recliner typing next to me dialysis machine. I've been doing home dialysis for nearly four years now. I feel so grateful not to have to go in center to do my treatments. There are times when I would just like to skip - I've done it a couple of times but know I'm hurting myself when I do. Life feels so much better for me after doing treatment at home. I can't understand why more people aren't aware that home hemodialysis is an option. When I've been hospitalized the medical staff is surprised I have it for an option.
My sister, my son, and I all have polycistic kidney disease. My mother had the disease also. Its a genetic condition and is kinder than most kidney disease. Mine didn't really start causing problems until I was in my 50's. I was diagnosed with the condition in my late 30's. There are different variations of the condition and the disease progresses differently with everyone. My mother's was very aggressive. She had a transplant in her late 30's and died when she was 40.
I've chosen not to try for a transplant. My sister has decided that is what she wants. She is starting her process towards transplant. I was unlucky enough to get several bouts of sepsis in a one year period and so they would require my kidneys removed before they would even put me on the transplant list.
I am grateful to be alive today. If I'd had problems earlier in life the options I have now would not have been available to me. When my mother was on dialysis in the 60's there were few dialysis machines available and you had to go before a committee to qualify to do dialysis. If you didn't match the criteria, you were just left to die.
Mother started dialysis in 1965. I never saw the machine she used, but my guess would be that it would have been very much like this one that they used in the Cleveland Clinic around the same time.
Things are so much different now. My machine is much smaller. It weighs about 75 pounds and is portable. Many travel with their machines.
Went to a Family History Consultant Training meeting tonight. There are a lot of changes coming with FamilySearch, good changes. Already we are able to add pictures, but we will soon be able to add stories and view the family tree with a fan chart. They are also changing the icon. I'm an older lady and like the current icon. The new one is trendy and youthful. I think the new logo will reflect the focus on adding pictures and stories. What do you think?
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